Waiting times for an autism assessment in the UK vary depending on location, demand and the assessment service. Some people wait several months, while others may wait considerably longer, sometimes years.
For individuals and families, waiting for an assessment can be difficult, particularly when additional support is needed at home, at work or in the community.
How do you get an autism assessment?
In England, the usual starting point is a GP appointment.
The process generally involves:
Discussing concerns with your GP.
Requesting a referral to an appropriate autism assessment service.
Completing any questionnaires or preliminary assessments.
Attending an assessment with qualified professionals.
Receiving feedback and a written assessment report.
What can you do while waiting for an autism assessment?
Waiting for a diagnosis does not mean that all support must stop.
You can:
Keep a record of difficulties experienced at home, work and in social situations.
Speak to your GP about any additional health or wellbeing concerns.
Contact autism charities for information and guidance.
Ask your local authority about an adult social care needs assessment if support is required.
Explore workplace or educational adjustments where appropriate.
Importantly, an adult social care assessment should consider a person's actual needs rather than relying solely on whether they have received an autism diagnosis.
What happens after an autism diagnosis?
An assessment report may explain the individual's strengths, differences and areas where support could be beneficial.
Depending on their circumstances, they may explore:
Workplace adjustments.
Benefits and financial support.
Community-based support.
Independent living options.
Adult social care services.
Frequently Asked Questions
Can you receive support without an autism diagnosis?
Yes. Social care needs should be considered individually, and an autism diagnosis is not a universal prerequisite for requesting an assessment.
Can adults be diagnosed with autism later in life?
Yes. Autism can certainly be identified and diagnosed during adulthood.
Who can help while waiting for an assessment?
GPs, autism charities, local authorities and relevant community services can provide information and guidance.
Finding the Right Support
At Union Supported Living, we recognise that people may need practical support regardless of where they are in their diagnostic journey.
Our focus is on understanding the individual, their circumstances and the support they need to live a fulfilling life.
Explore our Resources page or learn more about Supporting Autistic Adults.
For information about our supported living services in Warwickshire, contact admin@uslwarks.org.
